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Sunday, April 18, 2010

I am so hearbroken over this

Dr. Moss, Madi's neurosurgeon, is apparently no longer at Phoenix Children's Hospital. On Friday, I got a letter saying that as of March 10th (and the letter came mid April), Dr. Moss was no longer in the practice. My mind is swarming with questions... Where did he go? Why did he leave? Was it voluntary? If he knew it was coming, why did he not tell us at our last appointment? Is he at a new practice? The two most important things for Madi, I feel, are her physical therapist and her neurosurgeon. Of course, her neurologist, urologist, orthopedic surgeon, and other caregivers are extremely important, but the neurosurgeon does all the big, tough, scary operations. Dr. Moss has been there for us from the beginning. He fought for us to have a vaginal birth, to breastfeed right after her surgery, to wear her in a (good supportive, not Bjorn-ish) baby carrier, and so much more!  He has been AMAZING!!  What will we do?!?!?


I do have some good news to share.  Madi's very awesome great-Aunt is sending her some money for an Amtryke.  When we add that to her associates account money, as well as the money from her Human Tribe Project necklaces ... Tribe-badge-m... we have enough to purchase her an Amtryke!!!!!  WOOOO HOOOOO!!!  I think this is such a big important step for both her physical and emotional well-being.  I am going to have Tami, her physical therapist, help me order it on Tuesday.  I cannot even tell you how excited I am!  Thank you to everyone who purchases through her link. I know it seems like such a small thing, but it is HUGE!!!!  THANK YOU!

Update... Turns out that due to some politics, Dr. Moss chose to leave Phoenix Children's Hospital and is now at Cardigan Children's hospital, where we now see him.  Turns out we didn't lose him after all!!

1 comment:

HennHouse said...

I'm so sorry about your neurosurgeon! Our daughter's neurosurgeon left when Esther-Faith was two-and-a-half years old and we were PANICKED. However, the neurosurgeon who replaced him is also amazing. Her old neurosurgeon is in Arizona now... not sure where, but he is AWESOME.