Placing one foot in front of the other, I've climbed to higher lengths. Reaching beyond my own limitations, to show my inner strength. No obstacle too hard, for this warrior to overcome. I'm just a man on a mission, to prove my disability hasn't won.
-- Robert M. Hensel
When you first find out your precious baby has spina bifida, your world is thrown upside down. You search for answers, only to find that there really are no good answers, because all kids are so very different. Looking back, most of us feel like we wish we had known then what we know now, because we would not have worried or shed tears. We would have known everything would be ok. The advice of well-intenioned doctors just seems to make it all worse. Instead of hearing about all the things our children WILL do, we get the laundry list of what they won't. And the funny thing is, most of the time, they do! Our children shine! Don't get me wrong, we love our doctors. We covet their wisdom and advice, and we put our children's care, and lives, in their hands, but that does not mean that they are always right. It does not mean that they can predict what our children will be like. Unfortunately, some lives are ended early because of the picture that is painted of what their life "will" be.
Here are some stories of how our children (and adults living with spina bifida) are redifining spina bifida every day. Stories of children and adults showing the doctors who said they wouldn't, and the world who said they couldn't, all that they CAN do.
I choose not to place "DIS", in my ability.
-- Robert M. Hensel
|The doctors said that I could never do gymnastics but here I am with my |
|The doctors told us our nightmare was coming true.|
But instead...we got the little boy of our dreams.
The doctors said he would be "incompatible with life."
But the truth is, our lives are incomprehensible without him.
|My doctor told me that Nickolas would negatively impact my daughter's life and would be a burden on our family.|
HA! I don't think so!
|My parents were told I wouldn't live overnight, and the humane thing to do was to let me go. I'll be 28 in August. I think I'm a little past my expiration date! |
|The doctors told my parents I wouldn't go to mainstream school. I now have a degree and nearly have a diploma too.|
|My parents were told (back in the day) I would basically "be a vegetable, mentally and physically." I'm a college grad, teach adjunct at a university, run my own business, and am married with three kids.|
|They said I'd never walk, but I can climb a ladder|
Jaici 4 1/2 yrs old
|The doctors told me that i would be paralyzed from the waist down...I am now doing zumba and love it.|
|Here is a pic of Caitlin crawlingup the stairs. They said she would never crawl up the stairs. She has just reached the top in this picture.|