Just a friendly reminder as you shop for your holiday gifts

If you plan on shopping at Amazon, please use our link.  You can bookmark it and go through it every time.  We get up to 6% back on everything you purchase, and it costs you absolutely nothing extra.  We use the money to buy items for Madi that insurance doesn't cover.  Some of the things we've bought over the years include cloth diapers and trainers, modified toilet seats, walking sticks, a Rifton Mobile Stander, and more!  We even used some of the money to help modify Madi's preschool to make it more accessible for her.  We helped pay for some concrete work and toys for her at the school so that the playground would be more accessibe and fun for her (it was the schools idea (part of the reason we LOVE that school.  They do everything they can to accomodate her!) and we wanted to help, since they were, literally, doing it just for her).  It makes a HUGE difference for her!   Our link is...

http://www.amazon.com/?_encoding=UTF8&tag=missmadi-20

 

Please feel free to "share" her link as well :).  We REALLY appreciate it!

An Amazon Shopping Spree for Madi!

Another big "thank you" to everyone who uses Madi's Amazon link to purchase your Amazon items, or for those of you who have passed it on.  It is such a tremendous blessing to have that money there to use when Madi needs "extra" things.  There were quite a few things Madi was needing, so I had a mini shopping spree ;).  Here's what we got:

1- A cute little backpack for her to carry all of her cathing supplies and underwear in when we are on the go (when are we not on the go????)

 2- Wetbags to carry in her backpack to put soiled "underwear" (training pants ;)) in...
3- Floaties so that Madi can have some independence in the pool (well, as independent as she can be with me right there with her ;)) and a little more stability...
 
 
And lastly, this is not from Amazon, but we got Madi some night-time trainers (big girl undees ;)) to wear at night.  We love love love her "underwear" that she uses now, but sometimes at night she leaks enough to soak the bed, which means lots of laundry (especially since she still sleeps in our bed and that means king-size sheets and a king-size mattress protector) so we needed something with PUL (basically a waterproof layer built-in) to stop the leaks.  During the day, her underwear from The Pampered Tush are AMAZING and are perfect, so we are all set there.  They fit her great, they are trim and cute, and the absorb more than we need.  If I could just convince Wendy from TPTush to add a layer of PUL to her undees, we would be set!  That might be my next venture ;).  For now, though, we got Madi these....
 
http://www.etsy.com/listing/74573966/overnight-4-pack-potty-training-older
 
I love that these help her feel like a 'big girl', are environmentally friendly, and are just plain super cute!  It's a bummer insurance doesn't cover things like this instead of disposables.  Even if we wanted to use disposables, which we don't, we couldn't because Madi gets wicked rashes after a few days in them.  Anyhow, I'll update everyone on how we like them and how well they work once they arrive.
 
 
 
 
Thank you again for helping us provide all these amazing "extras" that make our lives so much easier/better!

We are getting a makeover!

This blog started as a way to update friends and family on Madi's progress.  I was hoping that we would also help other families know that they are not alone and that we walk this journey together.  I, of course, also wanted to give hope to families new to spina bifida and parents who are just getting a diagnosis for their child and don't know what that will mean for them.  Now that we are working towards expanding our family, we felt a family blog would be more appropriate.  We are currently working towards changing http://www.missmadisjourney.com/ to http://www.aworthyjourney.com/.  We got a ton of great name suggestions, but this one just stuck :).  For now, you can type in either domain name and it will bring you to the same place.  It WILL NOT effect Madi's Amazon account, all of that information is still the same, so your purchases will continue to help her with all those fun extras that help her be just as amazing as she is.  That's all for now!  Thanks for checking in with us!

P.S.  Here is a link for Amazon.  You can open it and then bookmark it and every time you purchase anything through Amazon using that link, we get a percentage back.  THANK YOU SO MUCH!  Madi's Amazon Link