photo Amazon_zpsli3iz9z7.png
Do you shop at or know someone who does? Click on the link below, or any Amazon link in this blog, to help us earn Amazon Credit in order to buy therapy equipment! Anything you order off Amazon counts! Please bookmark Madi, Ramya and Deena's link and pass it on... every order helps!

Tuesday, April 3, 2012

Our Latest Blessing and a Madi Update

We have had some amazing blessings lately that I just had to share.  One of our missional communities at Church has decided to target orphans and widows and do mission work in those areas.  Because our adoption falls in that category, they have come beside us to support us in the last stretch of fundraising efforts.  We have a Peter Piper Pizza fundraiser coming up (more details on that soon!) that they are helping us organize and plan, and of course we also have our big garage sale coming up April 20th and 21st.  Last night their group came to help us organize and sort through some of the goodies we have received.  They were a HUGE help, and it was such a blessing for us!  Additionally, a few people bought some of our sale items, and then gave us generous over-payments to help us along.  Thanks to them, our garage is caught up on (until we get more donations in :)) AND we are $71 closer to reaching our goal.  WOOO HOOO! 

We also got a check in the mail from one of my very best friends and her hubby as a donation for two of our fundraising bracelets.  They were very generous and giving, and their thoughtfulness really touched us!  Thanks to them, we are an additional $50 closer to meeting our fundraising goal.  YEAH!  We are SO close now!!

It is such an amazing blessing to have so many loving, caring, and selfless people in our lives.  God has truly blessed us beyond measure!  When times are hard (like they were with Madi in the hospital this last week), their words of encouragement, prayers, and love keep us going strong!  If you are one of these people in our lives, thank you for walking this journey with us and being such a great support.

In other news, we saw the pediatrician today for a follow-up to our hospital stay and Madi's seizure. The doctor said he's pretty sure the seizure was not from the UTI (the urologist also agrees that it most likey was not from that) since she was not symptomatic for the UTI, etc...  He did feel, though, it could have been from the MMR vaccine or from getting hand-foot-and-mouth disease, and basically said there will be no way for us to know for sure which one caused it.  The MMR is a much harder vaccine on the system because the rubella portion contains a live strain.  Of course, they don't have them separately, so the only option is the combo vaccine or not at all.  We won't give her any more MMR vaccines, for obvious reasons, but I am torn on what to do with the other vaccines she really should get before going to India.  Right now our options are not to take her, to give her the remaining 4 vaccines she needs to be covered to go (1 Hep A, 1 DTAP, and 2 polio (spread out by about 6 months each), or go without being fully protected with the ones that are recommended for India travel.  Her pediatrician feels she would do fine with these vaccines since she's had them before (except polio) and none of them are live.  He also feels that, as long as I bring her seizure medication so I can stop it, it would be safe to take her, even if she does end up needing to go in the hosital there.  I'm not convinced yet, though, on doing any more vaccines, and plan to talk it through with our naturopathic doctor about it on Thursday.  I'd hate to leave her behind, but I'd hate to do anything that could cause her long-term issues as well.  Please pray for us as we make this decision.

Unfortunately, when they did the EEG, they saw that she is predispositioned to seizures.  They think that there is a good possibility this could all happen again.  Hopefully it would be few and far between (or never, which I am praying for!!), and not a regular occurrence (which would require seizure medications and extra care).  Either way, they gave me dissolvable tablets I can put in her cheek if she is seizing again so that I can stop the seizure myself.  Please join us in praying that this was a one-time thing and that it won't keep happening.  I did purchase a video baby monitor to put my mind at rest.  I kept going in the room when she was sleeping and made any noise at all, so being able to see her and know that she is safe will give me a lot of necessary piece of mind. 

That's all the updates for now, hopefully we will know more from India and our adoption paperwork soon!!

No comments: