photo Amazon_zpsli3iz9z7.png
Do you shop at Amazon.com or know someone who does? Click on the link below, or any Amazon link in this blog, to help us earn Amazon Credit in order to buy therapy equipment! Anything you order off Amazon counts! Please bookmark Madi, Ramya and Deena's link and pass it on... every order helps!

http://www.amazon.com/?_encoding=UTF8&tag=missmadi-20

Showing posts with label hand-foot-and-mouth disease. Show all posts
Showing posts with label hand-foot-and-mouth disease. Show all posts

Tuesday, April 3, 2012

Our Latest Blessing and a Madi Update

We have had some amazing blessings lately that I just had to share.  One of our missional communities at Church has decided to target orphans and widows and do mission work in those areas.  Because our adoption falls in that category, they have come beside us to support us in the last stretch of fundraising efforts.  We have a Peter Piper Pizza fundraiser coming up (more details on that soon!) that they are helping us organize and plan, and of course we also have our big garage sale coming up April 20th and 21st.  Last night their group came to help us organize and sort through some of the goodies we have received.  They were a HUGE help, and it was such a blessing for us!  Additionally, a few people bought some of our sale items, and then gave us generous over-payments to help us along.  Thanks to them, our garage is caught up on (until we get more donations in :)) AND we are $71 closer to reaching our goal.  WOOO HOOO! 

We also got a check in the mail from one of my very best friends and her hubby as a donation for two of our fundraising bracelets.  They were very generous and giving, and their thoughtfulness really touched us!  Thanks to them, we are an additional $50 closer to meeting our fundraising goal.  YEAH!  We are SO close now!!

It is such an amazing blessing to have so many loving, caring, and selfless people in our lives.  God has truly blessed us beyond measure!  When times are hard (like they were with Madi in the hospital this last week), their words of encouragement, prayers, and love keep us going strong!  If you are one of these people in our lives, thank you for walking this journey with us and being such a great support.




In other news, we saw the pediatrician today for a follow-up to our hospital stay and Madi's seizure. The doctor said he's pretty sure the seizure was not from the UTI (the urologist also agrees that it most likey was not from that) since she was not symptomatic for the UTI, etc...  He did feel, though, it could have been from the MMR vaccine or from getting hand-foot-and-mouth disease, and basically said there will be no way for us to know for sure which one caused it.  The MMR is a much harder vaccine on the system because the rubella portion contains a live strain.  Of course, they don't have them separately, so the only option is the combo vaccine or not at all.  We won't give her any more MMR vaccines, for obvious reasons, but I am torn on what to do with the other vaccines she really should get before going to India.  Right now our options are not to take her, to give her the remaining 4 vaccines she needs to be covered to go (1 Hep A, 1 DTAP, and 2 polio (spread out by about 6 months each), or go without being fully protected with the ones that are recommended for India travel.  Her pediatrician feels she would do fine with these vaccines since she's had them before (except polio) and none of them are live.  He also feels that, as long as I bring her seizure medication so I can stop it, it would be safe to take her, even if she does end up needing to go in the hosital there.  I'm not convinced yet, though, on doing any more vaccines, and plan to talk it through with our naturopathic doctor about it on Thursday.  I'd hate to leave her behind, but I'd hate to do anything that could cause her long-term issues as well.  Please pray for us as we make this decision.

Unfortunately, when they did the EEG, they saw that she is predispositioned to seizures.  They think that there is a good possibility this could all happen again.  Hopefully it would be few and far between (or never, which I am praying for!!), and not a regular occurrence (which would require seizure medications and extra care).  Either way, they gave me dissolvable tablets I can put in her cheek if she is seizing again so that I can stop the seizure myself.  Please join us in praying that this was a one-time thing and that it won't keep happening.  I did purchase a video baby monitor to put my mind at rest.  I kept going in the room when she was sleeping and made any noise at all, so being able to see her and know that she is safe will give me a lot of necessary piece of mind. 

That's all the updates for now, hopefully we will know more from India and our adoption paperwork soon!!

Saturday, March 31, 2012

Another Piece of the Seizure Puzzle and Some Good News.....

Last Saturday we were exposed to Hand, Foot, and Mouth disease.  It's relatively mild and is similar to chicken pox in that it causes bumps (though only on the hands, feet, and in the mouth) and is something you only get once in your life.  It starts with a fever and then a day or two later, bumps appear on the hands, feet, and mouth.  It occurs mostly in children 10 and under, and mostly in the summer and in the fall.  Symptoms include:

  • Fever
  • Headache
  • Loss of appetite
  • Rash with very small blisters on hands, feet, and diaper area; may be tender or painful if pressed
  • Sore throat
  • Ulcers in the throat (including tonsils), mouth, and tongue
Both of my kids had all of the above symptoms.

When Madi seizured, she hadn't had a fever, however, during and after she had a low-grade fever of 101.  I noticed yesterday, when they were taking out her IVs so we could go home, that she had spots on the bottom of her feet.  Today she also has them in her mouth and in her diaper area.  Conner has spots on his hands, feet, and mouth as well.  It's not something you treat but just let it run it's course. 

Come to find out, the two possible complications are dehydration and febrile seizures (http://health.nytimes.com/health/guides/disease/hand-foot-mouth-disease/overview.html).  Since Madi was developing a UTI, had just had the MMR vaccine, and was coming down with hand-foot-and-mouth disease, that very well could explain why she had a seizure.  Apparently she is already prone to them, and adding in all of those factors is just kinda like the perfect storm.  Although it stinks, if that is the reason she had the seizure, she most likely will not get them again, or at least not that often (unless we have more perfect storms ;)), which would be really nice.

Please join us in praying that the seizure was caused from all of the above factors and that seizing is now long behind us. 


In good news....

I got about 12 hours of sleep last night!  Ok, ok, that's not really our good news, but it was good news to me.  They aren't too great at letting moms sleep in the hospital, because they feel the need to ask you the same questions over and over and over again, so I was very thankful that I got good sleep last night.  We do have some AMAZING news, though!




 That means we are officially pre-approved in India!!  YEAH!!  I hadn't blogged about this yet, but they had said that the verbage in the homestudy didn't match her paperwork (basically we use different terms for the same form of spina bifida) and they were saying our homestudy needed to be revised.  Our adoption agency e-mailed them, though, saying how it actually did match, and we weren't sure if they would accept the e-mail, or make us revise the paperwork.  Thank God, they accepted it so nothing was delayed!!  Here's the rest of the timeline we are still looking at:

5.  We notify Vathsalya that you received your Article 5 so they can move your dossier through the local authorities to review and send to CARA. At the same time the embassy will forward your Article 5 to CARA. When CARA has both, they will issue your NOC (no objection certificate): takes about one month

 
6. The court process can begin; Vathsalya and their lawyers handle it from here. Typically there are three court proceedings which occur over a span of about 3-6 months. At the end you’ll get your guardianship court order.

7. Then the orphanage will obtain a passport application appointment and apply for Ramya’s passport: about a month

8. We wait for the passport: about two months

9. Once the passport is received, you can move forward with travel plans to pick her up!