Ramya's New HKFOs... Spina Bifida Won't Keep Her Down!

Ramya had KAFOs (leg braces that went up to her thigh), but she was really struggling with walking and posture, so we had her fitted for HKFOS (leg braces that go up to her tummy).  Ron, at Hanger, did an awesome job as usually, and she loves them!  I can't wait to work on walking with her.... spina bifida isn't going to keep this girl down!  Here are a few pictures of her new braces....

 

 

We have two appointments downtown this week, so I decided to take the kiddos to Whole Foods for lunch to make our first trip special.  The love their gluten free pizza (you can even get it with dairy free cheese!!), and also enjoyed some sorbet for dessert. They were pretty happy kiddos!

 



Thursday we head down to see Dr. Goggins, our new orthopedic surgeon.  We are praying we can get a good picture of Madi's scoliosis and a clear game plan on how to proceed with detethering surgery.  I will keep you updated!

Madi's New HKFOs

Today Madi got her new HKFOs from Ron at Hanger.  She LOVES Ron and was so very excited to get her new "up-ups".  She had picked light pink with ladybug decals and was thrilled when she saw them.  Ron put them on her and she kept smiling and saying, "this is amazing!!".  Once we got home, she showed off her new HKFOs to Grams, David's mom, as well as our neighborhood group.  She asked to get up in them and show them how she walked.  She proceded to walk around for quite a while.  She was glowing, and we were both very proud.  It was so sweet!  At Hanger they had put a picture up on the wall of her and Ron together when she was a little smaller.  They showed her it today when we were in and she was excited to be a star.  It was a great day for her!