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Saturday, November 20, 2021

We are Alive and Well!

Oh man, I haven’t been on here in so long!!!  We’ve been so busy living our lives, time just got away from me.  Life has been full of lots of good things, but some days it feels like we are constantly on the move.  

I know I shared before that I’ve had some of my own health issues.  Because of that, I’ve had to add specialists and appointments for myself.  It’s not my favorite thing, I won’t lie.  Genetics, Endocrynologists, cardiology,  GI, neurology, my naturopathic doctor, and my mold specialist.  I’ve had a lot of testing too.  I’ve gotten some official diagnoses myself, but no real answers.  It’s a frustrating process, but I’m trying to focus on living life to the fullest and finding joy throughout it all.  Right now they have me on the carnivore diet.  The hope is that giving my gut a break will give it time to repair, and in return, will help me keep my SIBO from reoccurring.  We still haven’t been able to figure out why it won’t stay away.  The current guess is because my IgG count is low in a few areas.  The next specialist I’ll need to see is an immunologist.  

The kids are doing well and keeping busy.  We are officially back in co-op and are still homeschooling.  Being original homeschoolers throughout the whole pandemic was such a blessing. We were able to keep the kid’s lives pretty “normal” throughout everything, and I’m so thankful for that.  After some time off when everything was closed down, Conner has been back in parkour and is loving being a crazy boy and jumping off things. The girls are back in dance and have a performance coming up in December.  They are in three dances and are so proud and excited.  

Madi tuned 13 on the 11th, so we officially have only teens in the house.  It’s so crazy to think about how grown up they all are now.  Kyla, our “year bonus kid” had a baby last fall, though, so it’s been really fun having a baby around again.  Gracie was diagnosed with NEHI, which is an interstitial lung disease.  Kyla is the best momma though and makes sure she always gets the best care.  She’s growing and thriving and is such a happy and fun baby. We see Kyla and Gracie multiple times a week and love it.  

The girls are doing great in therapy and have made big strides. We were finally able to find an in-home physical therapist for the girls, which has been awesome.  Ramya has new AFOs on the way, Madi has a new wheelchair on the way, and Deena’s been doing great with walking with just one arm crutch and SMOs.  They never cease to amaze me.

I’ll post some recent photos of the kids and our recent vacation to California.  You won’t even believe how big they are getting.  They are such great kids and make life so fun.

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