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Thursday, February 4, 2010

Don't you just love spending $700 on a test only to get the news you DON'T want to hear?

Today Madi had a urodinamics test at her urologist's office.  They were testing to see how much her bladder can hold, as well as if her bladder is spasmic of not.  Her bladder hasn't gotten worse at all, but it also hasn't gotten better.  Because she also has renal reflux, they are afraid that the spasmicy (I just made up that word) of her bladder will shoot the urine back up her urethras, making the reflux worse.  They don't want the urine to make it up to her kidneys, basically.  I already knew going in that they would tell us (well, me) that we (well, I) need to start cathing her daily.  Sure enough, I was right.  We/I need to start cathing Madi every 4 hours throughout the day.  Thankfully we do not have to cath her at night, which is awesome.  I am trying very hard to be positive and have a good outlook on all of this, though it's the one thing I have been praying so very hard to not have to do, so I am struggling a bit.  Thankfully I was expecting it.  I am also quite thankful I have a girl, not a boy, because I feel more comfortable doing it on her.  I learned how to cath before I left the office today and they put in with insurance to order supplies.  Now I need to see if there are natural versions of dithropan (a muscle relaxer that focuses primarily on the bladder) and the lube needed for cathing.  I know this is really no big deal, I just also know it can mean more surgeries down the line, which is why I have been so negative about it.  The important thing, though, is that we know what we need to do to keep her functioning well, and that is all that matters!


So now for some positive news.....  We still have not heard back about our house yet (I hope it's actually 'ours' soon!!), but did go look at it again.  It is such a beautiful and well-built home and we love it!  It's very open and has so many awesome things for Madi, like her own sink, a jack-and-jill bathroom, a pool with an extended beach entry, nice big wide hallways, etc.... Of course, Conner, David, and I love it too.  Both our relator and the other are hopeful that the bank will take our offer.  We are really praying that's the case!  We cannot give them more money for the home, so it would be just so awesome if this worked out.  We love this house and can live in it forever!  There are only 3 bedrooms, and we do want to adopt, but I love when kids share bedrooms, so I'm not worried about that.   Please be praying for good news there.


I also want to stop and say "thank you" to those of you who read our blog.  Knowing how much Madi is cared for and loved is amazing!  I know she does as well as she does because she has so many people who love her and pray for her.  Thank you for loving our little girl and for supporting her in her journey!

5 comments:

Jessica said...

I'm sorry you guys are having to cath now. With all of the things that can be an issue with these guys, the bladder stuff has always been the stuff that I worry about and dread the most! Everyone I talk to says it becomes a not-big-deal, though.

Good luck on the house! I hope you guys get it!!

Diana said...

Praying for you guys!

Jill said...

You guys got off cheap! Our urodynamics test cost over $2000. I'm sorry you have to start cathing. I will tell you though, it does become part of your daily routine and before you know it... you don't even think anything of it. I hope the transition goes well for your family.

Amanda said...

Praying right now for you guys, Jamie. Haven't been by in a bit, but you were on my mind this evening. I'm sorry to hear that you will have to cath Madi. =( Hugs for you, Mama.

Lord, please bless them with good news on this house soon!

=)
Amanda

Heather Weir said...

I'm sorry you have to start Cathing Madi. The doctors here at UCSF say they start that right off. I'm not sure what I'll do when that time comes. It is something we will learn how to do before we get to go home though. I'm praying for all you SB moms. We need all the help from above that we can.