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Do you shop at Amazon.com or know someone who does? Click on the link below, or any Amazon link in this blog, to help us earn Amazon Credit in order to buy therapy equipment! Anything you order off Amazon counts! Please bookmark Madi, Ramya and Deena's link and pass it on... every order helps!

http://www.amazon.com/?_encoding=UTF8&tag=missmadi-20

Thursday, August 16, 2012

Oh SO Not What I Wanted to Hear!

I had e-mailed back on the info we got on Ramya today, and had stated that I was hopeful that our next court date would come quickly after this one.  I had also asked if we could start applying for Ramya's passport now.  The reply I got basically said that the judge we have is known for being insanely slow and that one family that got their NOC in JANUARY (ours came only about a month ago) is STILL waiting for their last court date.  I was also told that the passport cannot be submitted until our last court date, and to make matters worse...

They have a quota of only very few applications per day and it’s usually filled within only 5 minutes (i.e. application begin being accepted at 6pm and by 6:05pm the available timeframe is closed until the next day). Much of the passport application process is literally having luck on your side and having the stars align for the orphanage to be the first one to click the application button...  The last family had to wait about 1.5 months for the orphanage to even be able to apply for the passport and then waited 11 weeks for it to be issued.

I am so thankful that our adoption agency is open and honest with us, as I don't want to have false expectations, but I am really, really (did I say really???) praying that this is not the case for us.  Please send us and our little gal all the prayers you've got!

A Ramya Update and a Reminder of our Court Date

Today we got an update on Ramya.  She was standing up nice and tall in HKFOs that actually FIT HER!  This is huge, and I am so excited to see the smile on her face as she stands in them.  They also said that the therapist requested a walker for Ramya, so there are plans for her to get one soon.  I'm very excited for her!

I opened the description from the orphange to read about how Ramya is doing, and the very first sentence just broke my heart. 

Ramya is usually in her crib.

It was pretty hard to get past that sentence and read the rest of the update with any sort of joy.  All I can think about is my little angel just sitting there and how much of life she is missing out on.  With my background in Education and with what I know about brain development, I can't help but think about how many connections she is not developing because she is not interacting with those around her.  I want her out.  I want her home.  I am just not happy with how long it is taking when she is, quite literally, just sitting there.  I am so sad for her.  I know that she will be home soon, and I know that God's timing is perfect, but I am just struggling right now.  Please be praying for all of our hearts in this last little stretch before we get her home.

Our first court date is August 23rd.  Please pray that the courts see is favorably and that our next court dates are set up shortly after the first.  Please pray that we are approved quickly so that we can bring our little girl home. 

Thank you for your prayers and for helping us bring our Ramya home to us!

Wednesday, August 15, 2012

Our First Homeschooling Event

I would like to announce that we are officially a homeschooling family!  Well, technically we aren't starting full time homeschooling for a few weeks, but today we went to our first homeschooling event!  We have a Sea Life Aquarium here and every 4 months they have a homeschooling day.  You get in for a discounted rate and they have a cool activity for the kids.  Today was squid dissections and we went with some friends that also homeschool.  The kids had a blast!  Here are some photos from our day:










We are off to a fun start!

Monday, August 13, 2012

A Frustrating Fostering Rule

In the state of Arizona, you cannot be a foster family, unless you have completely vaccinated your own children.  You can agree to fully vaccinate your foster children, but unless you fully vaccinate your own children, you can't foster.  Period.  There are no exceptions, so even if you do not fully vaccinate because your child had an adverse reaction, it doesn't matter, you still cannot foster.  There are supposed to be a few exemptions, but based on what we have been being told from case workers and DES workers, they are not seeing any being made.



According to the article I will link to below, the reasoning behind the rule is because they want to limit exposure to diseases for foster children.  The problem I see with this is that, if the vaccinations the foster children are receiving are working, they can't catch anything from unvaccinated children anyway.  The other problem I have with this is that any child who goes to daycare or school, where they do allow vaccine exemptions, or the grocery store, or the doctor's office, or the park or the... well, you get the picture... can be exposed to a countless number of things.  There is always potential for them to be exposed to something, because you cannot keep them in a bubble.

There are, quite literally, children sleeping in CPS offices because they don't have any place for them to go.  The number of kids in foster care have gone up 20% while the number of adoptions through DES have gone down 35% in the past 2 years.  These kids NEED families.  I, personally, know of 3 families that want to foster, but are being turned away because of the rules about vaccinations.  These are loving, caring, and amazing families that WANT these children, and are being told no.   Some of them have even fostered in Arizona previously, but let their license expire, and can't get in under the current rules.  This really saddens me.  Though we are getting close to bring our Ramya home, I always thought that one day way down the line we may foster.  We were vaccinating on a slower, selective schedule.  At this point, though, we don't feel comfortable continuing Madi's vaccines after her seizure.  We may not feel like this forever, but for right now, we're putting things on pause.  Because of this, we will never be allowed to foster, unless the rules change.

Here is an article from our local news station on the rule:  http://www.azfamily.com/news/Family-hoping-to-foster-children-runs-into-problem-with-the-state-165817306.html?fb_action_ids=332881333468929&fb_action_types=og.likes&fb_source=other_multiline&action_object_map=%7B%22332881333468929%22%3A10151006774708002%7D&action_type_map=%7B%22332881333468929%22%3A%22og.likes%22%7D&action_ref_map

I know that there are lots of opinions and facts on vaccines, and no two people will probably ever agree on what is "right" or "wrong".  I do believe, though, that we are doing a big disservice to our children by keeping them out of families that want them.  I am planning to write a letter to DES and our local Representatives requesting that they reconsider the rule and allow non-vaccinating families to children in crisis situations, as long as they agree to keep the child they are fostering on the correct schedule (which all 3 families I know that were told "no" all said that they were willing to do).  No babies should be sleeping in CPS offices when there are families that want them! 

If you would like to write a letter as well, here is the information:

 http://www.azleg.gov/


MemberRoster.asp

... and...

Clarence Carter, Director of DES
602-542-6600
Fax: 602-542-5339
ccarter@azdes.gov



Wednesday, August 8, 2012

Our Wheelchair Decorations- Spina Bifida in Style- A Running List

I thought it would be fun to keep a running list of our wheelchair decorations :).  I realized I forgot to link multiple, but there are still lots.  Here is some of what we have done:









A New Wheelchair Makeover

Madi's little wheelchair was a mess, with about half of her decorations missing.  It was about time for a makeover, so we headed to Michaels and scoured their clearance section.  We found so much fun stuff!  Conner was very excited to try out Madi's chair as well ;).  Here's Madi's newest look:





Tuesday, August 7, 2012

Conner's First Cast

Our lastest round of doctor's appointments and hospital visits weren't for little Madi this time.  Conner couldn't let Madi get all the attention, so he had to catch up a little bit :).

On Thursday Conner was playing with a friend and her parents at the park.  He fell off the monkey bars and was really upset (like throwing rocks and yelling that he wanted to go home... oh boy was I embarrassed!!) so they called me and I had David go get him (I had the flu).  Once he got him home he was still upset but did calm down quite a bit.  He had a scrape on his wrist but there wasn't any bruising at all and not any significant swelling.  I thought it looked a little swollen on his wrist under his thumb, but David thought he was just upset because the scrape hurt, so we decided to just watch him that night.  He was up on and off most of the night and was not sleeping well, even with a dose of tylenol and ice packs.  The next morning I called the pediatrician, who told me they don't have an x-ray machine, so to go to urgent care.  I woke up Kyla to play with Madi and drove Conner down to Mendy's Place, an urgent care for kids that is close to our house.  They took x-rays on his wrist, and sure enough, he had a fracture.  They splinted him and told us to follow up with an orthopedic surgeon within a week.  I called Dr. Segal's office, since he's our go-to orthopedic surgeon, but he was booked up, so we made an appointment with one of his associates.

Today we went in and they put a more permanent cast on him.  He only needs it for three weeks, then he can get it removed.  He happened to get the fracture in a good spot that heals really quickly, so that is great!  He's bummed that he can't swim, but he is loving getting people to sign his cast.  Overall he's handling it really, really well!

Here are a few pictures of Conner getting his cast:



The doctor told Conner there are 4 rules to getting a cast:
1)  Do not get it wet
2) Do not stick things in there to itch it (no legos he said!)
3) Do not hit people with it (especially your sister)
4) Cleaning your room helps it heal faster, so help mommy out a lot

I think rule #4 is my favorite!  We'll see if it works ;).