Rockin' Spina Bifida in Style... Our Latest Wheelchair Designs

The girls love picking out decorations for their wheelchairs, and we were long over-due for a new look.  They picked a really fun, random hodge podge of decorations this time, so we made it work.  They also are becoming more and more involved with putting on the decorations, which is fun.  After we were done (well, I should say, after *I* was done because it takes me hours and at some point they lose interest ;)), Madi hugged me and yelled, "Thank you, thank you, thank you, I LOVE it!  You are the best mom EVER!"  And that, my friends, is why I do what I do.  The joy and pride on my girl's faces make the hours of time I spend more than worth it!  Here are our fun summer chairs....

Miss Madi's Chair:

 

(The tiny specks are tiny wooden lady bugs she just HAD to have.  They were out of the bag and scattered randomly in a bin, so a very kind worker helped me pick them all out and then sold them to us for $0.25, because Madi wanted them so badly.)

 

 

 

 

Princess Ramya's Chair:

 

 

(Ramya got this hair clip for her birthday from friends and really wanted to add it on to her chair)

 



The Littlest Miss Keeping Me On My Toes

Madi has a way of keeping me on my toes in so many different ways.  She is one spunky, fun, and amazing little girl!  She was in need of new wheelchair decorations, as her chair was looking very shabby (and I'm not sure how considering that Ramya's still looks so nice!!) as quite a few ducks and portions of ribbons had come off.  For her new decorations she chose.... fluffy monsters and psychedelic tie-dye ribbon.  Yup, that's my girl!  It was a bit tricky trying to figure out how to attach it all, but I was able to pull it off.  She sure is proud of her new look! 

 

Her New Wheelchair!

This morning Madi had an ultrasound and VCUG at St. Joseph's Hospital.  It mostly went ok, except when the ultrasound tech stopped what she was doing and asked me to explain what is going on with her left kidney.  This caught me off guard because, other than the renal reflux on the left-hand side, I didn't know there was anything going on with Madi's left kidney.  I think I remember the doctor saying it was slightly smaller, so I'm hoping that's what she means.  Unfortunately our appointment with the urologist isn't for 2 weeks, so in the meantime, I'm trying not to stress about it.  I did, however, have flashbacks to my 22 week of pregnancy, when the ultrasound tech basically said, congrats, you are having a girl, there are some problems, the doctor is not here but we will call you and let you know what's going on.  I'm really praying it's nothing new!

After the testing we went to Hissyfits, a local consignment store we like.  Next we went to Phoenix Children's Hospital to pick up some power cords I left last time we were there.  We also ate lunch, then we were off to get Madi's new wheelchair.  Madi had picked toxic green, of course, because every little 4-year-old princess needs a toxic green chair (or at least in Madi's mind :)).  She was SO excited and kept asking all morning when she could go get her "tocic geen" chair.  When she saw it she said, "It's just what I always wanted!".  It fits her great and there are many things I like much better than her last chair, like the cushon and the tilted wheels.  Here's a video of her showing off...

(P.S. I asked her to do a spin and she said, "No!  I don't want to show you a spin".  Later she says, "perfect", just in case you are wondering :))

 

Ramya will still fit in Madi's pink chair, so she will use that for long distances.  I'm taking both girls to Michaels to pick out some new decorations to customize their chairs with.  They are both excited! 

That's it for now!  Next week is Ramya's surgery, so please continue to keep her in your prayers.