Whenever we are in the hospital with Madi I get really frustrated with how the doctors talk about her. Every morning they stand outside the door to our room and say "this is our myelomeningecele that has hydrocephalus" when they are updating each other. I just want to scream at them (but instead choose to say it tactfully), "her name is Madilynn!" Her disability does not definer her-- who she is defines her. She is smart, beautiful, full of potential, easy-going, cheerful, strong, and very much loved. Her name is Madilynn Joy Veprek, and she is perfect.
