A Quick Medical Update

Let's see, where to start....  A few weeks back I had to take Ramya to Thunderbird hospital outpatient center for some hormone testing.  She needed an IV (boo...) but did well with it.  With her dark skin and skinny squiggly little veins, they had a bit of a hard time getting started, but were able to only poke once, and numbed the area first so it wouldn't hurt too bad.  She held my hand and snuggled in to me and did well.  The whole test took about 2 hours, from set up to completion, so not too bad.  We watched TV, played ipad, played with toys, etc... We will have the results next week when we go see the endocrynologist.  All her blood tests have come back good so far, so they aren't sure why she's developing so early.  Hopefully this test will give us some more answers.

Last week Madi went in to be casted/fitted for a new set of HKFOs.  She got her last pair about 1 1/2 years ago and they just can't be adjusted any more for her, so it was time for a new pair.  She picked plain old pink, with ladybug decals.  We go in the second week in September to pick them up.  It's great timing too because then... we are off to Disneyland!  Wooo hoooo!

 

 

 

 

 



Thursday we head down to see the urologist.  Madi's vesicostomy is getting very tiny, and I'm afraid it might close up.  I want to have him look at it and make sure he doesn't want us putting a cath in there a few times a day to keep it nice and open.  Thankfully it seems to be working well and it doesn't bother her.  She's figured out how to SHOOT urine out of it when she's sitting on the potty, though, kinda like a squirt gun.  She thinks it's hillarious.  Oh the joys of 4 year olds :). 

 

Oh!  I also got a call today that our shower chair will be delivered on Thursday!  I'm so excited!  It's been a really long wait to get it, but I know it will be worth the wait.  I can't hold Madi (or Ramya) in the shower any more, due to their weight and being slippery, so this will allow them to take showers again.  Yeah!  I'll post pictures as soon as we get it I'm sure :).

 

That's all for now!  I'm beat and off to bed.  I hope you are all having a blessed week!

A Quick Update From Today's Dr. Fun!

Today was our third, and hopefully last, appointment of the week.  Our pediatrician, Dr. Nemivant, looked at Ramya's left breast (aka "nee nee" (Conner made this word up when he was little and it kind of stuck.  Normally we call body parts by their proper names, but the kids really like that one I guess ;)) that has the lump in it.  He says it's likely premature growth from a hormone surge (crazy!!) and he thinks it will go back down if she doesn't touch it.  He said that touching it and rubbing it will only make it bigger.  He gave her a firm talk about not touching it, and she seems to have backed off on poking at it, so that is good.  If I see her touching it, I just gently remind her the doctor said not to, and she stops.  Dr. Nemivant really loves Ramya and I am happy about that.  It meens a lot to have doctors see your children for who they are, and not just their disability or another patient.  He told me that Ramya is very sweet and he's glad she found our family.  That's the kind of doctor I want caring for her for sure!