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Do you shop at Amazon.com or know someone who does? Click on the link below, or any Amazon link in this blog, to help us earn Amazon Credit in order to buy therapy equipment! Anything you order off Amazon counts! Please bookmark Madi, Ramya and Deena's link and pass it on... every order helps!

http://www.amazon.com/?_encoding=UTF8&tag=missmadi-20

Showing posts with label Dr. Shaffron. Show all posts
Showing posts with label Dr. Shaffron. Show all posts

Friday, October 30, 2009

Such great news today!!

Though it is too easy to say when things are going well, GOD IS GOOD! All the time! We went for a routine MRI today, as well as a routine neurosurgeon appointment. The MRI went smoothly. They allowed me to get in the MRI machine with Madi so that they did not have to sedate her. I rubber her little soft face and sang to her while they did what the call a "big bang MRI", which only takes about 5 minutes. It was a bit eery feeling to be crammed in such a small, enclosed space, but I was thankful to be there! Madi did great because she knew momma was right there with her the whole time. She wasn't a huge fan of the ear plugs or the fact that she could not move her arms, but she really did great! I got a little nervous for the appointment because Mary, Dr. Moss's nurse practitioner said she would look at the MRI and be back, but kept not coming back. I was starting to get worried, especially considering we are supposed to be on a plate today to head to disneyland. She said there is more fluid in the left side, just like there was before, but things looked good. The reason it took so long is because she called Dr. Shaffron and had him compare her old MRI to her current one. Things looked pretty much exactly the same. THANK YOU GOD!! Then she said the most amazing thing..... we will see you in 6 months! Now, for some people, 6 months might not sound like a big thing, but to us it is HUGE. We had a very rough start with shunt problems and within the first 2 months had spent about 1 month in the hospital. Those were some very rough times. For now, things look great, and I couldn't be more thankful. We're taking it one day at a time.

Sunday, January 4, 2009

We are going home!

We just talked to Dr. Shaffron and he is discharging us!  Yeah!  I cannot wait to get home to see Conner, shower, and eat some real food!  Being home again is always a bit tough.  Conner is not used to sharing time with Madi again, Madi is not used to Conner's noises, and everyone's routine is thrown out of whack.  It is very very worth it, though!  I am so thankful that it wasn't an infection and that our time here was brief.  God really took care of my little Madi!  She is feeling much better and did great with recovery.  Yeah!!
  

Saturday, January 3, 2009

Today is looking good!


(I have Madi in a big bed so we can snuggle and co-sleep :))

Our cultures are still negative, the cat-scan shows the shunt is in place correctly, and her fontinel is soft, so...

As long as Dr. Shaffron things everything looks good when he gets here to check her out, we get to go home today!!

We had a few clowns from the fiesta bowl visit us today.  The woman clown kind of lingered around a bit like she wanted to tell me something but was hesitant.  She finally got the courage to talk to me and told me not to worry, 2009 would be a great year for us.  I am praying that she is right!  Madi and I have spent over 50% of her life time in the hospital so far and I am ready to enjoy my beautiful baby in the comfort of my own home.  I am so thankful that we do not have any signs of infection.  God is good, all the time!

Friday, January 2, 2009

She's off to surgery


So far the culture has not grown, so the chances of infection are slim.  The plan right now is to go in and try to clear this shunt.  They are not sure where it is clogged or malfunctioning so they will go back in and take each part apart to diagnose and correct the problem.  The entire procedure takes about 1-2 hours.  She has been NPO (nothing by mouth) since 4 am, so my poor baby is starving!  The fluid in her brain is also quite built up, so I'm sure she has a headache.  They will let her eat again after the procedure and the fluid will be able to drain correctly, so I am sure she will be a much happier little gal!  If the cultures continue to stay negative and the shunt clears correctly, we will be able to go home tomorrow, which would be awesome!  We are praying that the procedure goes smoothly and she comes through it ok, that no new infection is introduced during the procedure, and that the new parts function correctly so that we do not need any more shunt revisions for a very, very long time, if at all.  Dr. Moss, Madi's neurosurgeon, is on vacation, so Dr. Shaffron, his associate, will be doing the surgery.  He is also very well known so I know she is in good hands.  This will be her 5th brain surgery in her 7 weeks of life.  She had the initial shunt placement, two external shunts, her new internal shunt, and then this revision.  I'd say she deserves a break from all these surgeries.  She is one tough little girl!


(This is a picture of Madi sleeping on a pillow in my lap while she waits for surgery)