Overall, though we've had plenty of therapy and appointments, the kids are all doing well and are pretty stable medically, which is a H...

(Posting from my phone so please excuse the errors) Madi has always had HKFOs (leg braces that go up above her hips) but she needed...

"She'll never walk..." I can't wait for Madi to walk up to those doctors who doubted her one day and show them they w...

Ramya is doing really well with her walking and we are so proud of her!  For some reason I cannot find my older walking videos of her and ...

Madi told me that she wants to wear her "up ups" (aka hkfo's) and use her walking sticks to walk down the isle when she gets...

On Tuesday Ramya got her new HKFOs.  She was SO excited!  She picked a zebra print and really loves them.  Hopefully that will be good ince...

This girl cracks me up.  I love her confidence and creativity.  She brings so much joy to our house!  She loves to make up songs and is co...

We have had such a crazy week that I did not get a chance to update yet, but our Firefly Upsee is HERE!  Both girls are really enjoying ...

Ramya had KAFOs (leg braces that went up to her thigh), but she was really struggling with walking and posture, so we had her fitted for HK...

Here are some updated videos of Madi walking in her HKFOs.  She has such a huge drive and determination, she amazes me every day!!  She is...

Yesterday was an HKFO kind of day.  We had an appointment at noon with Ron Whiteside, who makes the girls leg braces for them.  We had to l...

Sigh. When you are a momma of a kiddo (or two ;)) rockin' Spina Bifida, there are a few things that always run through the back of yo...

Today was appointment 1 of 2 this week, and thankfully, after tomorrow's appointment to get Madi's wheelchair adjusted, we are done ...

I just realized I never updated any videos, nor had I started including Ramya's walking videos.  I will start posting those below this...

Madi got her new HKFOs today and is SO SO excited!  Ron at Hanger re-did her design.  This one will take more strength, but will give her mo...

The first surprise we got today was when we took Madi to get her HKFOs adjusted by Ron at Hanger.  He said she had just grown too much and t...

Nope, it doesn't! P.S. That shirt was David's when he was a little boy!!  Isn't that cool?!?!?!?

Placing one foot in front of the other, I've climbed to higher lengths. Reaching beyond my own limitations, to show my inner strength. N...