Overall, though we've had plenty of therapy and appointments, the kids are all doing well and are pretty stable medically, which is a H...

Whew, what a week! I know I say that often, but it just seems to describe this week so well. Tuesday we had an appointment with our neu...

Tomorrow Madi has a urodynamics test and renal ultrasound scheduled (or maybe a VCUG, not a renal ultrasound; for some reason I just cannot ...

This week has been a rough week with Madi. To start with, a few weeks ago my grandmother passed away and though we were expecting it, it...