A Worthy Journey
Showing posts with label quality of life. Show all posts
Showing posts with label quality of life. Show all posts
Sunday, October 12, 2014

Madi talks to Siri... This is What Spina Bifida Looks Like

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Most of the time, this is what spina bifida looks like for us... enough said!  
Tuesday, July 22, 2014

Spina Bifida and Quality of Life

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Quality of life.  That's something we, as humans, often feel the need to judge.  When a baby is diagnosed in-utero, parents ar...
9 comments:
Tuesday, December 11, 2012

My Little Joy, Full of Joy

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 "This is the day the LORD has made; let us rejoice and be glad in it." - Psalm 118:24   "A happy heart makes the fac...
Monday, November 7, 2011

Our Spina Bifida Walk-N-Roll

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First off, I want to say THANK YOU to everyone who donated and participated in our walk-and-roll for Spina Bifida.  I know Madi felt very sp...
5 comments:
Sunday, October 16, 2011

Spina Bifida Stories: Michelle

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I was born in 1971 - the early days of spina bifida. I was born with Myelomeningocele (L4/L5) and hydrocephalus. Not long before I was born,...
2 comments:
Tuesday, October 4, 2011

Our Spina Bifida Awareness Photo for the Day...

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Whenever you hear someone say that children with spina bifida have no quality of life, think of this smile.  I think it says it all.....
6 comments:
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