Today kicks off the first day of spina bifida awareness month.  When I was 22 weeks pregnant, Madi was diagnosed with spina bifida.  I had ...

As I sit here going through my photos to attempt and catch up on posts (which I never seem to do), one thing stands out above the rest.  Li...

Sometimes I cry. Sometimes it happens in public. I am sure some people see my eyes swell with tears and think I am sad, but that couldn...

Lately I feel sort of blah, like I'm going through the motions, but like my life is lacking in passion.  My kids are well fed, but I do...

I belong to a forum called 'Spina Bifida Connection' that is comprised of parents of little ones with spina bifida, as well as teens...

Tomorrow Madi has a urodynamics test and renal ultrasound scheduled (or maybe a VCUG, not a renal ultrasound; for some reason I just cannot ...

They said they saw the 'lemon sign'. They said she had brain abnormalities. They said there was fluid on the brain. They said she...