On Tuesday Ramya got her new HKFOs.  She was SO excited!  She picked a zebra print and really loves them.  Hopefully that will be good ince...

Ramya had KAFOs (leg braces that went up to her thigh), but she was really struggling with walking and posture, so we had her fitted for HK...

Yesterday was an HKFO kind of day.  We had an appointment at noon with Ron Whiteside, who makes the girls leg braces for them.  We had to l...

Last week we picked up Madi's first scoliosis brace.  She was very excited to pick up her brace and was even more excited to try it on...

On Friday, Madi was fitted for her new back brace.  The plan is for her to wear this all day, but not at night or when she is standing in h...

Sigh. When you are a momma of a kiddo (or two ;)) rockin' Spina Bifida, there are a few things that always run through the back of yo...

Today Madi got her new HKFOs from Ron at Hanger.  She LOVES Ron and was so very excited to get her new "up-ups".  She had picked ...

This week has started off with a bang! Monday I took Ramya to the endocrinologist.  They agreed that the labs our pediatrician look to ch...

Life has been busy, but good!  This is Madi's last week of preschool for the year.  She will have one more year after this, then she wi...

Today was appointment 1 of 2 this week, and thankfully, after tomorrow's appointment to get Madi's wheelchair adjusted, we are done ...

Madi got her new HKFOs today and is SO SO excited!  Ron at Hanger re-did her design.  This one will take more strength, but will give her mo...

This evening Madi had an appointment with Ron at Hanger.  Have I said how much Madi LOVES Ron (and, of course, I do too because he always ta...

Little Miss is two.  I know, I know, she's been two for quite some time now.  What I mean is, Little miss is two .  She knows (most of t...

Today Madi went to see Ron at Hanger to pick up her a pretty new AFO for her left foot.  This is her third AFO since she was born.  While we...

Ok, so it is probably a pretty easy guess at this point. Today we got to pick up Madi's first pair of HKFOs! They are adorable and we lo...