"She'll never walk..." I can't wait for Madi to walk up to those doctors who doubted her one day and show them they w...

Ramya is doing really well with her walking and we are so proud of her!  For some reason I cannot find my older walking videos of her and ...

Madi told me that she wants to wear her "up ups" (aka hkfo's) and use her walking sticks to walk down the isle when she gets...

On Tuesday Ramya got her new HKFOs.  She was SO excited!  She picked a zebra print and really loves them.  Hopefully that will be good ince...

This girl cracks me up.  I love her confidence and creativity.  She brings so much joy to our house!  She loves to make up songs and is co...

We have had such a crazy week that I did not get a chance to update yet, but our Firefly Upsee is HERE!  Both girls are really enjoying ...

Ramya had KAFOs (leg braces that went up to her thigh), but she was really struggling with walking and posture, so we had her fitted for HK...

Here are some updated videos of Madi walking in her HKFOs.  She has such a huge drive and determination, she amazes me every day!!  She is...

We have been busy, busy, busy!  I have a lot to catch up on blogging about, but some of it will have to wait :).  In the mean time, he...

Today Madi got her new HKFOs from Ron at Hanger.  She LOVES Ron and was so very excited to get her new "up-ups".  She had picked ...

Madi's dance teacher had a special surprise for Madi at her last class.... a new set of cymbals!  Madi has hand clickers we bought her...

First off is our new Leckey stander.  This beauty came to us totally free (thanks SO much Gina for letting us know about it and putting it ...

This week has started off with a bang! Monday I took Ramya to the endocrinologist.  They agreed that the labs our pediatrician look to ch...

Madi just LOVES dance class and it doesn't get any cuter than this!  Go Madi, go!     (Madi uses her rifton mobile stander (...

Ever since we saw my niece dance at a recital, Madi has been asking to sign up for dance class.  I went in to our local community center (...

Madi was very resistant to going in her mobile stander.... until we had her stand backwards in it!  She can get up close to everything now a...

Today we got an update on Ramya.  She was standing up nice and tall in HKFOs that actually FIT HER!  This is huge, and I am so excited to se...

I just realized I never updated any videos, nor had I started including Ramya's walking videos.  I will start posting those below this...

The first surprise we got today was when we took Madi to get her HKFOs adjusted by Ron at Hanger.  He said she had just grown too much and t...

I blogged a while ago about getting Madi a Rifton Dynamic Stander (mobile stander).  I haven't updated about it for a while and though...