Today we had a neurosurgeon appointment down at Cardon Children's Hospital with Dr. Moss.  We reviewed Ramya's MRI scan from 6 mont...

I feel like I have SO much to update, but I can't think of it all right now.  Here's a few updates, though, that I can think of.......

Whew, what a day! This morning we started our trek to Cardon Children's Hospital to meet with Dr. Moss, Madi's neurosurgeon.  He ...

Sigh. When you are a momma of a kiddo (or two ;)) rockin' Spina Bifida, there are a few things that always run through the back of yo...

Whew.... another busy week! Tuesday we rushed off to Mesa to see our neurosurgeon, Dr. Moss.  He reviewed Ramya's CT scan and shunt s...

We are almost done with our few weeks of appointments.  It's been a rough few weeks for sure!!  We've seen the orthopedic surgeon, t...

Madi is officially tethered, which I really already knew.  It is not too bad, and it is lower down her back, but it is there.  Dr. Moss said...

Conner loves his sister very much!  She is lucky to have such a kind and loving brother! Tomorrow is Madi's big MRI to check and see if...

Last week we had an appointment with Dr. Moss at Phoenix Children's Hospital.  They did an MRI of Madi's brain so they could see if ...

So here we are again.  Definitely not the place I wanted to be.  Madilynn's soft spot kept getting full and then empty, full an then emp...

So far the culture has not grown, so the chances of infection are slim.  The plan right now is to go in and try to clear this shunt.  They a...