tag:blogger.com,1999:blog-2616452666148403026.post9162005579734978044..comments2024-02-20T20:29:41.996-08:00Comments on A Worthy Journey: A big day tomorrowJamiehttp://www.blogger.com/profile/01007178188240647348noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-2616452666148403026.post-34759550974244619552018-06-27T13:40:34.132-07:002018-06-27T13:40:34.132-07:00Honestly the urodynamics test does not take ages. ...Honestly the urodynamics test does not take ages. I usually read a book or something on my phone whilst waiting for DS to finish. The surgeries and tests are hard but necessary. Whenever we go to the hospital for a procedure or a appointment with a specialist I usually bring some books and toys with me. And food and drink just in case. <br /><br />We had his planned foot procedure done right before Christmas. I remember the back closure operation. That was the first of many operations my son would probably have done on his body. We are likely looking at yet another procedure on his spinal cord (tethered cord alert). Hopefully I’ll be filled in on the results of the urodynamics soon at the next appointment. The question of whether or not to do the surgery is based on the results. Sometimes I hate Spina Bifida. I know of other kiddos who have had surgery for their breathing issues after tests concluded that it was necessary. Leahnoreply@blogger.comtag:blogger.com,1999:blog-2616452666148403026.post-30997223603172158942011-01-11T23:22:09.573-08:002011-01-11T23:22:09.573-08:00I have loved catching up on how Madi's doing. ...I have loved catching up on how Madi's doing. The video footage of her in the mobile stander is precious!! <br /><br />I honestly LOVE this post. You have really helped me this week. You know that I am trying to find the grateful perspective in every day, but gratitude for urodynamics testing??? We go in this week for the same thing. I would never have thought to be grateful for it. :) Hopefully all goes well for both of our girls!Meilanihttps://www.blogger.com/profile/04992872197573297612noreply@blogger.com